As someone chronically Ill, I feel this so hard.

Every minute that I’m not at work I’m dedicating to making sure I’m likely to be well enough for work tomorrow.

I don’t do anything after work without asking “how will this impact my health tomorrow?” and that includes things like not being able to sweep my own floor because I know I need to sweep at work and the nerve damage in my arms won’t let me sweep twice in one day without keeping me up all night in pain, and if I don’t get enough sleep, I’ll get a migraine and won’t be able to physically see anything.

Most of my days off are spent in agony trying to restore myself and desperately trying to reset my house and home life so I can keep up with work, without overdoing it on Sunday and making myself sick for Monday.

So yeah, on the one day a month where I wake up for work and I don’t throw up or almost shit myself, and my heart rate is doing what it’s supposed to do, and I can see and hear and feel my feet… The temptation to “call in healthy”, so I can actually have a day off to enjoy myself for the first time in over a month is really hard to ignore.

I actually did that this week because Wednesday was my birthday, I went to work, it was a “bad workable day” (vs a “good workable day” or a “bad unworkable day”) and Thursday I woke up feeling really good, I only had a 2 hour shift and it was just admin so I took my first sick day in 6 months and used it to do all my linens and towel laundry. It felt like a proper day off because I was healthy enough to get stuff done for myself, without being in pain or having to stop to run to the bathroom or let my heart calm down, or give up on folding because I can’t feel my arms.

I can’t do that every time I want or even need to though. My bank account is really good at forcing me to go to work, healthy, half dead, or heaving. Chronic illness is expensive, and some days trying to keep up with work feels like it costs my health more than not working. but sadly not working is not an option for me, because I’m capable of work, so I must. (and continue to push my gov for universal basic income)

For context as to how working while disabled messes you up. I got hit by a truck on the way to work last year, I got to the office and used their first aid kit to patch myself up. Booked a doctors appointment, told my boss I’d be leaving early, then kept working until my appointment.

My boss was fine with this, and then someone on reddit posted a photo of the crash and my boss saw, they realised when I said “I was hit by a truck” what I meant was “I was hit by a truck”

When asked how I was feeling, and reporting “no different to usual” my boss sent me to the ER because they thought I had a concussion and was acting confused. ER checked me out, dislocated shoulder and wrist, soft tissue damage here and there, but otherwise nothing major or serious or nothing I don’t already deal with on a daily basis. I went back to finish my shift and my boss asked what I was doing working after I’d been hit by a truck.

I feel exactly the same level of pain today as I do every other day. If I take today off because this level of pain is apparently unworkable, it’s a slippery slope, eventually I’m going to have to come back to work despite being in this exact same level of pain. This is my baseline, now I can truly compare it to being hit by a truck.

I used to be on a pension, I wanted to work because I wanted purpose in the neo-liberal hell scape of my society. but my mental health was too shot because of this deep rooted idea that I deserved rest just for being in any level of pain that was out of the ordinary, and subconsciously I would talk myself out of doing anything because I deeply believed I shouldn’t have to.

But I don’t have that luxury, my ordinary will always be “hit by a truck” level, so right now I either learn how to consistently work through it, or drop dead broke and homeless.

In Australia Google maps has issues with routing cyclists on 80km busy truck transit roads that have no bike lanes, footpaths or shoulders. You’ll regularly get stuck behind lost uber eats cyclists whose map took them through a motor vehicle only underpass.

The other day google maps decided to reroute me from a quiet, wide street with no bike lane that was otherwise perfectly safe, and tried to send me through a nightsoil alley, down a heritage stock run that was paved with cobblestones and crossed over a storm drain 4 times in a zig zag.

Yeah, “safer” because there’s no cars I guess, but not suitable for bikes at all.

I have galactorrhea, pumping rooms aren’t a natural maternal family matter, for me, it’s a medical procedure.

Privacy is a lactating person’s choice, and right. public feeding is a choice that I agree needs to be destigmatised. Personally I’m not comfortable with public pumping, because I see my breast milk as medical not nutritional, so I choose privacy for myself.

It’s also difficult, it’s stressful, it’s uncomfortable. Having comfort, focus, peace and quiet, it’s important.

I don’t even have a uterus, so getting my leaky chest out in public is even further from being socially acceptable. I’ve lost count of how many times I’ve had mastitis because I have not been able to expell in a timely manner. Partly that was because I was embarrassed by my condition and didn’t stand up for myself and my need for access to a pumping room at work, and part of it was because my employers didn’t understand my need for a private room, they pointed out that it’s never been a problem for mothers in our office to whip a tit out when baby was hungry, and/or that my need was different because the reason I I had breast milk at all was different.

No one gets to expect me to be comfortable with nudity. My breast milk, my choice if I have privacy or not.

I used to do it in the bathroom because I didn’t have anywhere else, but that was a gamble, do I let myself get an infection because I’m letting my ducts clog, or do I risk an infection by pumping milk in the toilets.

Send the email, then call me to say “hey I sent you an email that I really need you to read and respond to urgently, I’ll let you go so you can focus while reading, talk later”

For one of my 3 jobs, I don’t have regular work hours, I’m employed just 5 hours a week, on call, for IT support for a little non for profit.

My contract, my email signature, my numerous discussions with the team all state “if you require a response within the same business day, please phone me to alert me to the issue”

I check my email once a day, I don’t have time to be checking it several times a day when I’m only paid for 5 hours work, I need to conserve those hours for maintenance and support I’m not about wasting anybody’s time.

So if someone happens to email me after I’ve already checked my inbox for that day, I won’t see it until tomorrow. Hence, phone me, I want to work, I just need a way to alert myself that work is available for me, a text message will also suffice.

I realise this is asking someone to change the way they operate to make my job easier. But the number of times I check my email at 1pm, and there’s zero tickets, so I turn off my computer because I’m not going to sit and watch an empty inbox for my free time.

Then the next day I check my email and I have 20 emails all from the same person from about 3-5pm all saying “hey I have an issue” “hey following up this is kind of urgent” “hey, are you even checking your emails?”…no obviously I’m not, it would have saved you so much effort to send 1 text after 1 email as I requested than to send 20 emails, and I would have actually gotten the text in time.

Also half the time the issue needs to be fixed with a phone call anyway because it’s something simple like “Microsoft Word is missing”… because the program was unpinned from the taskbar and the staff member just needs help remembering the start menu exists. Most of my support resolutions are the equivalent of describing the buttons on the TV remote to your grandmother over the phone. (lots of older, less tech literate folk working in NFP sector)

At the end of the day, alcoholism, depression, and obesity, they are unhealthy states of being.

They are not something people choose, and while there are treatments, it’s not something everyone can control.

That doesn’t mean we should simply accept this state of being. People living with depression deserve better, people living with alcoholism deserve better than for us to say “it’s out of their control, they can’t help it, so we shouldn’t judge, let them be” when what they need is better support and better treatment options.

Likewise, obese people deserve better than “eat less, move more, fatty!” but they also deserve more than “all bodies are beautiful, just let us be”

I say this as someone who was a fat kid, and a fat teen, and a fat adult. I had a BMI of 50 for a most of my life. In my mid 30s, I got it down to 28, and still going.

So I say all of this is as someone else who was fat, obese, and morbidly obese. Obesity should be viewed the same way we view depression and anxiety, though depression and anxiety also need some better PR.

Being obese may not not always be a choice, but the the ultimate end goal of how we view obesity as a state of being is to find ways we can all manage our weight. Because obesity is not healthy, for those who can’t easily control their weight, life sucks, they are patients in need of treatment, not morally failing people, but also not “perfect plus sized activists who are healthy at every size”

Because while bodies and sizes vary and we can do healthy things at every size. Obesity is inherently unhealthy. Obviously being bullied won’t solve anything, but neither will society politely ignoring how hard it is to live a full life while suffering from obesity.

Being black isn’t an inherent health issue. It genuinely is just a different state of being. 99% of problems unique to black people are social issues, not medical issues… So the comparison between obesity and substance abuse issues is more helpful than trying to compare being obese to being BIPOC.

Yup, thyroid, adrenals, and gonads have been checked, both with blood work and untrasound.

I have dysautonomia due to a brain stem herniation, and temperature regulation is effected by that, but it’s just been so weird that the way this symptom effects me was decades of not feeling the cold, then suddenly now I’m not feeling the heat.

I know which one I’d choose if I got to pick… and it’s the one where I don’t need to go to a wound nurse for frost nip in February.

I was a year round shorts guy, genuinely didn’t feel the cold. Last year I suddenly became a year round thermal stockings, skivee, thermal gloves, jumper and woollen pants guy.

I can’t get warm. It’s like I’m catching up on 30+ years of never feeling the cold by feeling the cold all the time.

Yes and no, if you scambait hard enough your number can eventually be added to a blacklist for larger scam organisations that bought your data for use in multiple scam attempts.

In my experience that has really cut down on the calls.

In 2020 the department of human services accidentally posted my personal phone number on a list of support services for people experiencing housing or food insecurity. This number was then circulated by every major news source in my state. I couldn’t change my number at the time because I had no legal ID (still don’t… Can’t figure out how to get ID without ID, but I have a new number now at least) at first I didn’t really notice the ratio of spam calls to genuine calls for the wrong number (ie, people calling my number because they needed housing/food) . I just remember getting 40+ calls a day at many stages.

But as the actual number for the food relief service was circulated, I eventually stopped getting genuine calls and I was getting 3-5 scam calls every single day.

After a year of scam baiting, I was getting 2 a week.

Now, I’ll do something online that requires sharing my current number, within a few hours I get a scam call because my data has been sold, but I bait the heck out of that first call and I usually don’t receive any further calls which suggest my number was blacklisted by a larger scam organisation, and I won’t be hassled until my data is sold again as a new item.

It’s hard to avoid getting your number on scam lists when the largest health insurance company, and the second largest telecommunications company in my country both had major data breaches where millions of customers identifying information was accessed and sold to scammers…

Nah, I’m just a person with leaky tits.

You do anyway without piercings.

The nipple isn’t technically one hole, it’s kind of like a porous sponge. After all, mammary glands are just mutated sweat glands, it’s a series of holes connected to a series of ducts.

So a lot of people find when lactating that it can spurt in crazy directions from unexpected parts of the nipple.

The number of times I find myself plugging the iron in behind the TV and then holding an old Amazon box against the wall and juggling my pants while I iron because I’m in a rush and that’s the available outlet plug and space.

The first pride was pretty wrathful.

The female condom has two rigid rings, one in the sealed end that sits under the cervix, and one at the open end.

The ring at the open end is designed to hold the condom open and give the penetrating partner a nice big safe target to make sure the penis/toy/whatever goes inside the condom and not accidentally between the condom and the vaginal wall. This ring also provides some minor protection to parts of the vulva due to its size.

The internal ring is much smaller by comparison, and is not that much larger than a diva cup. The internal ring of a female condom is a similar size to a “soft cup” menstrual cup, it’s a little bit smaller than a contraceptive diaphragm.

Dogs aren’t cops, dogs are brainwashed by cops. Dogs are essentially trafficked victims of police. The dog just wants to be a good boy, it’s not the dog’s fault the pigs have been teaching it to nark on bullshit.

Yeah, nah, Tamworth. We have our own branches of country music down here mate.

Blak Country is a seriously cool branch to explore if you’re curious about how Australia has interpreted US country music into a localised sub-genre. Swap your mouth organs for a gum leaf and add some yidaki riffs for extra bass.

Having had a defecography this is very similar to the encouragement the radiologist gave me…

Yes and no, live captioning software is common on phones and tablets, but we call them “craptions” for a reason.

If the speaker has a thick accent, isn’t always facing the same direction when speaking, uses lots of slang terms, industry terms, or numerical data, it can really trip up the captions and sometimes it leads to a more confusion than having nothing at all.

Where as if you were basically just using the PowerPoint to display your speech so others could read along, the written words will match the spoken words.

Live captions are definitely better than nothing if you rely on subtitles, I’m only HoH so I prefer just straight up lipreading, compared to trying to lip read in order to retroactively process inaccurate live captions that make no sense.

My entire understanding of skinheads was “skinheads are fascists” and I never delved any deeper into it. Until the other month when my barber told me I should consider getting a chelsea cut, my gut reaction being “why would I want to look like a neonazi?”

But one simple online search later, and I went back for the shave. The original sentiment of the skinhead culture is slowly being reclaimed, though there will always be two potential interpretations of what someone with that style stands for, I’ll happily rock my skinbird cut at union rallies and antifa protective counter-protests when actual nazis try to raid our local queer clubs.

IRL subtitles for deaf attendees feels like the only valid reason for this.

Ah, thank you! I’ve been thinking about moving over to Aussie zone - I had very little understanding of federation when I first signed up so just went with whatever instance seemed the most general, but I think this confirms it, time to get a new account.