• EatATaco@lemm.ee
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      5 months ago

      It’s shocking, but not at all surprising, that one of the top comments here is calling desperate sick suffering people “brain dead” for taking a risk to try and get better, or help advance a technology to help people similarly suffering in the future.

      I guess our hatred of musk exceeds our compassion for the sick.

      • atrielienz@lemmy.world
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        5 months ago

        Even you think something must be wrong with them if they’re agreeing to this. Just because you lean more toward an ailment that would make someone desperate rather than someone being deficient in congestive function doesn’t mean you’re any better. Like. I get it. It’s hard to imagine a regular person just thinking one day it’s a good idea to sign up to let a company run by Elon Musk implant anything into their body (especially their brain). But this is a bit of a high horse riding comment, isn’t it?

        • EatATaco@lemm.ee
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          5 months ago

          The first implant was in a paraplegic man. The FDA is not approving this experimental procedure for otherwise healthy people.

          It’s not hard for me to believe some healthy person would be a dope and want to experiment with this, but it’s not what is being considered.

          The top level comment is shitty on severely ill people for being willing to take a risk to improve their life and the lives of others.

          It’s either pure trash, or the poster is so blinded by their hatred for musk that they aren’t thinking rationally. I suspect the latter.

          • atrielienz@lemmy.world
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            5 months ago
            1. I don’t know that the top comment assumed the people signing up for this trial were sick or medically unwell.

            2. I am not arguing the why or who of clinical trials. My comment had nothing to do with the why or who. It had to do with the judgements made by both comments about the who.

            3. I can understand why you’d feel that comment was insensitive if you have the context you provided. But an assumption about the motives without necessary context does not equal guilt on the original commenter. This person may not have considered the health of someone willing to join such a trial at all. It may never have occurred to them that unhealthy people were signing up.

            4. His hatred for Musk is kind of justifiable in the way Musk has accrued his wealth and the actions of his companies under his direction. And given that track record the logic of not wanting to become the next Hyperloop that is now just an underground tunnel.

            5. This is the internet. People gonna people.

            • EatATaco@lemm.ee
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              5 months ago

              Pretty much all of the misconceptions you listed could have been solved by simply reading the article, or even being slightly informed about the process of approval of experimental evidence.

              Judging from a place of ignorance isn’t really any better.

              • atrielienz@lemmy.world
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                5 months ago

                See number 5. People really are going to people, but compounding that is also not any better.

                • EatATaco@lemm.ee
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                  5 months ago

                  And when people are mindlessly and unfairly judging people, we shouldn’t call them out? If I see someone being racist should I just throw up my hands and say “well people are going to people”?

                  And why aren’t you following your own advice and allowing me to people without being challenged?

                  • atrielienz@lemmy.world
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                    5 months ago

                    People are naturally going to have the reactions they do to Elon Musk. If the news outlets didn’t constantly put him in the spotlight more people would probably be willing to read the article and learn about the trial and the science. As it is I’m not surprised people didn’t read the article.

                    I’m not particularly invested in either side of this which makes me a pretty unbiased third party simply pointing out that neither of you is making the community better with these kinds of comments. If you had quoted relevant parts from the article that would have been a better way to convey what you meant.

                    And mostly because you responded to me.

          • 🇰 🌀 🇱 🇦 🇳 🇦 🇰 ℹ️@yiffit.net
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            5 months ago

            Perhaps you should read the other comments where I explain that the company’s track record of ethics and success sucks ass, and isn’t the only one doing this kind of research. They’re just the only ones willing to go through human trials with garbage that falls apart.

            Them using desperate people doesn’t help with the ethics here. It actually is much worse, taking advantage of people.

    • sunbunman@lemm.ee
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      5 months ago

      I’d imagine they’re mostly physically disabled people trying to get control of their limbs or access to the freedom this type of tech is promising. As abhorrent as all of the testing behind this tech is, if I were a quadrapalegic or something similar, I would volunteer because wtf else have I got going for me?

      • It’s not the tech itself that worries me. It’s who in this case is supplying it along with the fact the previous patient had 85% of the functionality just stop and they haven’t done a damn thing to address that before they want to try it on another patient.

        There are other companies working on the same or similar tech that are far less fucked up.

        • Strykker@programming.dev
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          5 months ago

          Look we all hate Elon and how neuralink is developing their tech that’s not in question here.

          People are taking issue with your referring to desperate people with very very poor quality of life due to injuries or medical conditions as “brain dead”

          They aren’t “brain dead”, dumb or stupid, they are reaching for what looks like the only potential light in their life. A life that is probably impossibly difficult for any of us typically healthy people to imagine.

        • mindlight@lemm.ee
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          5 months ago

          I’m pretty sure not everyone has a life and people who cares about them.

          • Mr_Dr_Oink@lemmy.world
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            5 months ago

            Is that exclusive para/quadriplegics in your mind? Only that you are countering a statement that essentially says that losing one or more limbs doesnt make people stop loving you, by saying not everyone has people that love them. Which would be a good point if people not loving you was exclusive to people who have lost a limb or limbs…

            • mindlight@lemm.ee
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              5 months ago

              Did you just try to angle my comment to be about people with disabilities being less capable and/or of less value?

              What I countered was a claim where the first part stated that everyone has a life, which is just not true. For the second part of the claim to have any value in the sentence, the first part has to be true. Which it wasn’t.

              Whether I read it wrong or not doesn’t change the fact that I never limited my statement to be about people with disabilities or disabilities automatically taking the life away from people.

              So I stand by my claim, that not everyone of the 8 billion living in this planet has a life and people that care about them.

              • Mr_Dr_Oink@lemmy.world
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                5 months ago

                You were responding to a comment about quadriplegics which painted context to your response. If that’s not what you meant, then gine. Im sorry i misunderstood your response. You could have been more clear that you were generalising and not directly responding to the claim being made.

                To your point. No not everyone has a life and people that love them but i would argue that a blanket statement that started this thread, that if you were a quadriplegic then you would volunteer to have experimental surgery with unknown side effects and effectiveness because you have nothing else going for you is not inherently true.

                You dont need to be quadriplegic to want to volunteer. You dont have to not have anything else going for you, and you dont need to have a life or people that love you.

                If all you are saying is not everyone has a life or people that live them, then i fail to see how its relevant to the point made in this thread.