• 0 Posts
  • 132 Comments
Joined 2 years ago
cake
Cake day: September 5th, 2023

help-circle

  • The surgery did, but it was a long recovery period. I think it was three months with a temporary colostomy bag while my intestine healed and then at least a year for my body to get used to the new setup. After about 5 years I noticed that I was closer to normal, or as normal as you can be after getting a j-pouch. But it’s better than going through continued episodes. I don’t think I would have survived more than a couple additional bouts. Plus living with UC really increases your risk of colorectal cancer. Fun stuff



  • Ha, oh man. When I finally got unplugged from everything, about two weeks later, I sorta sprinted up a small flight of stairs and felt every muscle in my legs tearing. It was a very strange and uncomfortable feeling. It probably hurt a lot but they had me on some gnarly painkillers. I did feel it the next day though when I got home. That was about 13 years ago. I hope they have better treatments for it now than surgery. It seemed like a better option than Remicade at the time. Oh well, what’s done is done. Basically back to normal after all this time.


  • I hope you don’t. In my case nothing helped so I had my lower intestine removed. The made a facsimile with a section of small intestine and re-plumbed me. It was during that recovery period that I went on TPN to effectively reduce the usage of my digestive system.

    TPN is Total Parenteral Nutrition. Basically it’s a large bag of glucose, lipids, vitamins and minerals that is fed through a PICC line (in you upper arm) directly above your heart for thorough dilution and distribution through your bloodstream. An external peristaltic pump doses it into you throughout the day. It’s a trip, albeit cumbersome. Oh, and it does spikeTF out of your blood sugars so you have to take insulin during the process, which sucks.






  • It’s not a risk if you know what you are doing. Then again I don’t forage for mushrooms that look like phalloides, besporigeras or marginatas. I stick with ones that are easily identifiable like Lions Mane, Oyster, Lobster, chanterelles, morels, porcinis, matsutakes and the like.

    It gets you outdoors and learning your land, even if you are just observing/documenting and not collecting for food. That said, I don’t get the people that roll the dice with iffy picks or trusting roadside vendors without experience. They are crazy. Amatoxin death sounds gnarly.